Specialty Sisters Talk — Hemophilia

Q&A

Education Hemophilia

Q&A

My sister and I being very involved in the world of hemophilia, as well as education, we get a lot of questions.  We are here to answer some of the most common questions we are asked.  Feel free to comment below and ask any other questions we have not answered today.   What is hemophilia? Hemophilia B?The short answer…hemophilia is a rare bleeding disorder in which a person's blood does not clot properly. Many different clotting proteins help the blood clot; hemophilia b has a deficiency of clotting factor 9. Is it contagious?No. Hemophilia is not contagious.Is hemophilia genetic?The majority...

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Secret Diet Tips from a Hemo Mom

Diet Healthy eating Hemophilia Mom Tips

Secret Diet Tips from a Hemo Mom

Much comes with being the mother of a severe hemophiliac. One of the more difficult struggles I have had personally with all the new changes in the last year is diet. With severe hemophilia, the condition can target joints in the body. Meaning, if there is an injury to a joint, it can not only cause internal bleeding in that area, but also joints could have frequent inflammation. For Grayson, his "target" joints are his ankle and elbow. I did a lot of research in the beginning, trying to learn how to improve all aspects of his well being. I...

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Becoming a Hemo Family

Bleeding disorder Family Hemophilia Hemophilia b Life

Becoming a Hemo Family

The transition from living what was considered a "normal" life to our new normal was …. Different. Looking back to before Grayson's diagnosis, there were so many signs he had hemophilia. Without getting into all the details and multiple stories, this should have been discovered way earlier.   Grayson had issues crawling, walking, and playing at times, which did not stop him from playing like a normal toddler BOY. He jumped, ran, and played just as hard as any other boy... sometimes with painful consequences.  It turns out my husband and I always had concerns about his bruising and periodic joint...

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